LARA - LAM Australasia Research Alliance. Seeking a cure for LAM (Lymphangioleiomyomatosis)

LARA'S Objectives

> Promoting research
Fostering and funding research to discover the cause and cure and better treatment for LAM.
> Educating physicians
Improving diagnosis and treatment of LAM by promoting knowledge and awareness of LAM to general practitioners and specialists.
> Supporting women with LAM
Providing information and assistance to women and their families.
> Fundraising
Raising money to support our objectives - chiefly to fund research.
> Networking
Collaborating with countries and organisations in our region to exchange information.

Major Donors
Macquarie Group Foundation
Henry H. Roth Charitable Foundation
Hollick Wines

Acknowledgements
LARA thanks the professionals who work pro bono for this not-for-profit organisation. We highly recommend the services of:
Ben Higham, Webhead
Karen Riethmuller, KGR Design
Allan Hughan, Accountant
Peter Kelso, Bartier Perry Lawyers

View all our Acknowledgements

Contact Us

LAM Australasia Research Alliance

Nevena 0419 185 491
Janet 0411 816 444

PO Box 636 Bondi Junction NSW 1355
Australia

LAM Australasia Research Alliance (LARA)

The LAM Australasia Research Alliance (LARA) is dedicated to improving the health prospects of women with LAM in Australia, New Zealand and throughout the region. A disease that affects only women, LAM is rare and often devastating. Read more about LAM.

Latest News, Events and Research

Diagnostic Blood Test Can Identify Rare Lung Disease

Researchers at the University of Cincinnati and Cincinnati Children's Hospital Medical Center have established that a particular blood test can successfully identify lymphangioleiomyomatosis (LAM).

Self-Renewal Properties of LAM Cells

This project aims to determine whether LAM cells are capable of growing under conditions that favour the generation of self-renewing cancer stem cell-like cells.

Founder of LAM Treatment Alliance Amy Farber featured in New York Times

After Amy Farber learned she had the rare and fatal disease called LAM in 2005, she became determined to increase and speed up research into her illness with the hope of finding a cure in her lifetime

Penola Racecourse LAM Fundraising Event

We congratulate Ros Pollard on being LARA's Star Fundraiser for 2009. Her friends and supporters staged a huge fundraising event at Penola Racecourse, South Australia on 12 December 2009.

Woolcock Institute hosts LAM seminar for doctors

Respiratory physicians and doctors get the latest on LAM research and hear first hand from patients what it is like to live with LAM.

Does Your Mobile Phone Have ICE?

Think of how many names you have entered on your mobile, – it makes sense to identify the phone number of our next of kin, in case of emergency.

Women with LAM

Ros Pollard with partner, Craig Bosko

Mara Rezo

Kristy Hope

Anna-Lise White with husband, Russell

Heather Telford

Janet Neustein

What to do if you think you might have LAM

Educate your doctor. Most doctors, even respiratory physicians, have never come across LAM and know little about the disease. Print information page for your GP
See our list, which is gradually being extended. Ask your GP to refer you to a respiratory physician with recent experience in treating LAM.
If you haven't already done lung function tests, including DLCO, arrange these through your GP.
Contact LARA to register your name (confidentially), request a call from someone who is living with LAM, and/or to receive our occasional newsletter, LARA Links.
Keep as positive, active and fit as you can. (See IMPORTANCE OF PULMONARY REHABILITATION)

What Can I Do if I've Just Been Diagnosed With LAM?