LARA'S Objectives
-
> Education
Promoting knowledge and awareness of LAM to practitioners and women with LAM -
> Information
Providing information for and about women with LAM -
> Support
Providing for the needs of women with LAM -
> Diagnosis
Facilitating diagnosis by raising awareness of LAM -
> Research
Fostering and funding research to discover the cause, cure and prevention of LAM -
> Fundraising
Raising money to support our objectives -
> Networking
Collaborating with countries in our region by exchanging information
Contact Us
LAM Australasia Research Alliance
4/209 Oxford Street
Bondi Junction 2022
T (03) 9751 0070
E admin@lara.org.au
PO Box 636 Bondi Junction NSW 1355
Australia
If you have been diagnosed as having LAM, you are probably confused, bewildered, and perhaps even angry. How could you have such a rare disease?! You may feel like you're 1 in a million. Your diagnosis may follow years of unexplained breathlessness, a persistent cough or chest pain. You may have been told you had asthma, bronchitis, emphysema or depression. It probably didn’t make sense until you found out about LAM.
LAM symptoms are often misdiagnosed and confused with asthma, emphysema or depression. Many women will never find out they have LAM. As yet there is no cure, but various ways of treating LAM are being trialled with some signs of success. Researchers are hopeful that studies of LAM and other diseases will result in a way of stopping LAM in its tracks.
Acknowledgements
Webhead
Karen Riethmuller, Graphic Designer of KGR Design
LARA’s Auditor Allan Hughan
LARA’s Public Officer, Solicitor Peter Kelso
Sprinting Printing
all of whom generously support LARA’s fund-raising efforts.
This site is currently being refurbished. We welcome your suggestions for ways of improving it. Please use the CONTACT form accessible from the menu bar.
What to do if you think you might have LAM
- Educate your doctor. Most doctors, even respiratory physicians, have never come across LAM and know little about the disease. Print information page for your GP
- See our list, which is gradually being extended. Ask your GP to refer you to a respiratory physician with recent experience in treating LAM.
- If you haven't already done lung function tests, including DLCO, arrange these through your GP.
- Contact LARA to register your name (confidentially), request a call from someone who is living with LAM, and/or to receive our occasional newsletter, LARA Links.
- Keep as positive, active and fit as you can. (See IMPORTANCE OF PULMONARY REHABILITATION)