Contact Us
+61 (0) 419 185 491
+61 (0) 411 816 444
PO Box 636 Bondi Junction
NSW 1355
Australia
admin@lara.org.au
The LAM Australasia Research Alliance (LARA) is dedicated to improving the health prospects of women with LAM in Australia, New Zealand and throughout the region. A disease that affects only women, LAM is rare and often devastating.
ALL DONATIONS TO LARA ARE FULLY TAX DEDUCTIBLE
Your contribution to LARA will go 100% to funding vital medical research to find a cure for LAM.
You can donate to the LAM Australasia Research Alliance by sending us a cheque, using our PayPal facility, or by making a deposit directly to our ANZ Bank account: 012 055 4926 67193.
Please advise us of your donation by sending an email to admin@lara.org.au with your name, address and email address. We will respond with our thanks and a fully tax deductible receipt.
Major Donors
Macquarie Group Foundation
Roth Charitable Foundation
Mr Robert Gavshon
Hollick Wines
Acknowledgements
LARA thanks the professionals who work pro bono for this not-for-profit organisation. We highly recommend the services of:
Ben Higham, Webhead
Karen Riethmuller, KGR Design
Peter Hersh, Loggica Pty Ltd
Peter Kelso
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Worldwide LAM Awareness Day
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Wednesday 01 June is Worldwide LAM Awareness Day Lymphangioleiomyomatosis (LAM) is a rare, progressive and frequently fatal lung disease that strikes women, usually during their childbearing years. Symptoms may include shortness of breath, coughing, collapsed lung, chest pains and/or fatigue. Leaders of LAM organisations from The LAM Foundation in the United States and 17 other countries including Australia have declared 01 June an annual international day dedicated to LAM awareness. Because LAM is such a rare disease, it receives much less media attention than more commonly diagnosed diseases. The LAM Foundation knows of approximately 1600 cases of LAM worldwide, but it is estimated that there may be as many 250,000 – 300,000 women with LAM who are currently undiagnosed or misdiagnosed. In Australia we know of 65 women currently living with LAM. In many states of Australia women with LAM are being interviewed for radio programs which will be aired this Wednesday. “Aired” is a word that resonates with women who have LAM – they often depend on supplementary oxygen to survive. LARA is funding to find a cure for LAM. You can help make a difference to the lives of women with LAM by contributing to the funding of vital research into the disease. |