Contact Us
+61 (0) 419 185 491
+61 (0) 411 816 444
PO Box 636 Bondi Junction
NSW 1355
Australia
admin@lara.org.au
The LAM Australasia Research Alliance (LARA) is dedicated to improving the health prospects of women with LAM in Australia, New Zealand and throughout the region. A disease that affects only women, LAM is rare and often devastating.
ALL DONATIONS TO LARA ARE FULLY TAX DEDUCTIBLE
Your contribution to LARA will go 100% to funding vital medical research to find a cure for LAM.
You can donate to the LAM Australasia Research Alliance by sending us a cheque, using our PayPal facility, or by making a deposit directly to our ANZ Bank account: 012 055 4926 67193.
Please advise us of your donation by sending an email to admin@lara.org.au with your name, address and email address. We will respond with our thanks and a fully tax deductible receipt.
Major Donors
Macquarie Group Foundation
Roth Charitable Foundation
Mr Robert Gavshon
Hollick Wines
Acknowledgements
LARA thanks the professionals who work pro bono for this not-for-profit organisation. We highly recommend the services of:
Ben Higham, Webhead
Karen Riethmuller, KGR Design
Peter Hersh, Loggica Pty Ltd
Peter Kelso
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Australia-wide Living with LAM Study
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 Denise Haylen (centre) lunches with women living with LAM: L-R: Marica El-Zarif, Janet Neustein, Mary Canniffe and Kristy Hope. Registered Nurse Denise Haylen is interviewing women living with LAM in various parts of Australia. The interviews are central to a PhD study through the University of Sydney’s School of Nursing. The study has been approved by the Human Research and Ethics Committees of the University of Sydney and of St Vincent's Hospital, where Denise Haylen works part time in the Cardiothoracic Unit. She notes that while there is a large amount of medical literature on LAM, there are no detailed studies investigating women's experiences of living with this condition. The aim of the study is to present women's own perspectives including their needs and priorities. By increasing knowledge and awareness of LAM, she hopes to improve support for women with LAM. |