Contact Us
LAM Australasia Research Alliance
Janet +61 411 816 444
PO Box 636 Bondi Junction NSW 1355
Australia
The LAM Australasia Research Alliance (LARA) is dedicated to improving the health prospects of women with LAM in Australia, New Zealand and throughout the region. A disease that affects only women, LAM is rare and often devastating.
ALL DONATIONS TO LARA ARE FULLY TAX DEDUCTIBLE
Your contribution to LARA will go 100% to funding vital medical research to find a cure for LAM.
You can donate to the LAM Australasia Research Alliance by sending us a cheque, using our PayPal facility, or by making a deposit directly to our ANZ Bank account: 012 055 4926 67193.
Please advise us of your donation by sending an email to admin@lara.org.au with your name, address and email address. We will respond with our thanks and a fully tax deductible receipt.
Major Donors
Macquarie Group Foundation
Roth Charitable Foundation
Mr Robert Gavshon
Hollick Wines
Acknowledgements
LARA thanks the professionals who work pro bono for this not-for-profit organisation. We highly recommend the services of:
Ben Higham, Webhead
Karen Riethmuller, KGR Design
Peter Hersh, Loggica Pty Ltd
Peter Kelso
FREQUENTLY ASKED QUESTIONS
How many women have LAM?
We have no proven statistics, but as of November 2011 we know of 72 women in Australia and 22 in New Zealand living with Sporadic LAM or LAM/TS. According to the LAM Foundation, about 300,000 have been diagnosed with LAM/TS worldwide and 12,000 with Sporadic LAM.
Do men get LAM?
Generally no. Only one case we know of has been reported.
Can LAM be passed on genetically?
Sporadic LAM is not inherited, but when associated with tuberous sclerosis, it can be.
How can I find out if my symptoms are LAM?
Ask your GP to organise one or more tests (see WHAT IS LAM)
What should I do if I seem to have LAM?
Ask your GP to refer you to a respiratory physician with expertise in treating LAM.
Is there a cure for LAM?
There is no cure at present, but researchers are working on finding one. Currently the ultimate treatment is a lung transplant.
Is LAM life-threatening?
Life is fatal. So is LAM. Whilst LAM can threaten quality of life, it is progressive and there are ways of dealing with it. (see TREATMENTS)