The LAM Australasia Research Alliance (LARA) is dedicated to improving the health prospects of women with LAM in Australia, New Zealand and throughout the region. A disease that affects only women, LAM is rare and often devastating.
Major Donors
Macquarie Group Foundation
Henry H. Roth Charitable Foundation
Hollick Wines
Acknowledgements
LARA thanks the professionals who work pro bono for this not-for-profit organisation. We highly recommend the services of:
Ben Higham, Webhead
Karen Riethmuller, KGR Design
Allan Hughan, Accountant
Peter Kelso, Bartier Perry Lawyers
Contact Us
LAM Australasia Research Alliance
Nevena 0419 185 491
Janet 0411 816 444
PO Box 636 Bondi Junction NSW 1355
Australia
FREQUENTLY ASKED QUESTIONS
How many women have LAM?
We have no proven statistics, but we know of over 50 women In Australia with Sporadic LAM or LAM/TS. According to the LAM Foundation, about 300,000 have been diagnosed with LAM/TS worldwide and 12,000 with Sporadic LAM.
Do men get LAM?
Only one case we know of has been cited, so the answer is usually no.
Can LAM be passed on genetically?
Sporadic LAM is not inherited, but when associated with tuberous sclerosis, it can be.
How can I find out if my symptoms are LAM?
Ask your GP to organise one or more tests (see WHAT IS LAM)
What should I do if I seem to have LAM?
Ask your GP to refer you to a respiratory physician with expertise in treating LAM.
Is there a cure for LAM?
There is no cure at present, but researchers are working on finding one. Currently the ultimate treatment is a lung transplant.
Is LAM life-threatening?
Life is fatal. So is LAM. Whilst LAM can threaten quality of life, it is progressive and there are ways of dealing with it. (see TREATMENTS)