LARA'S Objectives
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> Education
Promoting knowledge and awareness of LAM to practitioners and women with LAM -
> Information
Providing information for and about women with LAM -
> Support
Providing for the needs of women with LAM -
> Diagnosis
Facilitating diagnosis by raising awareness of LAM -
> Research
Fostering and funding research to discover the cause, cure and prevention of LAM -
> Fundraising
Raising money to support our objectives -
> Networking
Collaborating with countries in our region by exchanging information
Contact Us
LAM Australasia Research Alliance
4/209 Oxford Street
Bondi Junction 2022
T (03) 9751 0070
E admin@lara.org.au
PO Box 636 Bondi Junction NSW 1355
Australia
FREQUENTLY ASKED QUESTIONS
How many women have LAM?
No proven statistics but we think there are about 50 women In Australia with Sporadic LAM or LAM/TS.
According to the LAM Foundation, worldwide about 300,000 have been diagnosed with LAM/TS and 12,000 with Sporadic LAM.
Do men get LAM?
Only one case we know of has been cited, so the answer is usually no.
Can LAM be passed on genetically?
Sporadic LAM is not inherited, but when associated with tuberous sclerosis, it can be.
How can I find out if my symptoms are LAM?
Ask your GP to organise one or more tests (see WHAT IS LAM)
What should I do if I seem to have LAM?
Ask your GP to refer you to a respiratory physician with expertise in treating LAM.
Is there a cure for LAM?
There is no cure at present, but researchers are working on finding one. Currently the ultimate treatment is a lung transplant.
Is LAM life-threatening?
Life is fatal. So is LAM. Whilst LAM can threaten quality of life, it is progressive and there are ways of dealing with it. (see TREATMENTS)