The LAM Australasia Research Alliance (LARA) is dedicated to improving the health prospects of women with LAM in Australia, New Zealand and throughout the region. A disease that affects only women, LAM is rare and often devastating.
Major Donors
Macquarie Group Foundation
Henry H. Roth Charitable Foundation
Hollick Wines
Acknowledgements
LARA thanks the professionals who work pro bono for this not-for-profit organisation. We highly recommend the services of:
Ben Higham, Webhead
Karen Riethmuller, KGR Design
Allan Hughan, Accountant
Peter Kelso, Bartier Perry Lawyers
Contact Us
LAM Australasia Research Alliance
Nevena 0419 185 491
Janet 0411 816 444
PO Box 636 Bondi Junction NSW 1355
Australia
LINKS
The mission of the LAM Australasia Research Alliance "LARA" is to seek a cure for the rare lung disease, lymphangioleiomyomatosis, referred to as LAM.
LARA is based in Australia and working to strengthen links across the Asia-Pacific region and throughout the world.
LARA aims to facilitate correct diagnosis of LAM by familiarising medical practitioners with the rare condition, to support women who have been diagnosed, and to fund research to accelerate the discovery of a cure for LAM.
Research Institutes
Malaghan Institute, Wellington New ZealandWoolcock Institute, Sydney, Australia
Ludwig Institute, Melbourne, Australia
Australian Lung Foundation, Brisbane, Australia
Australasian Registry Network for Orphan Lung Disease
International LAM Organisations
- LAM Foundation
- LAM Treatment Alliance
- Worldwide LAM Patient Coalition
- In January 2007, The LAM Foundation formed the Worldwide LAM Patient Coalition (WLPC) to collaborate with patient organisations in Australia, Austria, Brazil, Canada, China, France,Germany, Italy, Japan, New Zealand, Spain, United Kingdom and United States.
- New Zealand LAM Charitable Trust
- LAM Africa
- LAM Austria (österreichs Selbsthilfegruppe für Lymphangioleiomyomatose)
- LAM Brazil
- LAM Canada
- LAM China
- LAM France
- LAM Germany
- LAM Italia
- A.I.LAM
- LAM Action UK
- LAM Japan
- LAM Romania
- LAM Spain (Asociación Española de Linfangioleiomiomatosis)
- LAM Turkey (LymphAngioleioMyomatosis)
NZ based practice specialising in improved breathing techniques, with books and advice for people outside Auckland.
Reports, News, Journal Articles, Conferences
- LAM Treatment Alliance report on Oxford Summit January 2008
- The Oxford summit was attended by patient representatives from seventeen international LAM organisations as well as researchers and drug company partners. LARA's Vice President Bronwyn Gray was there. Click the link to read more...
- European LAM Conference (PDF)